Life Inspires Me » River Bank Run http://lifeinspiresme.com I may not hear the world, but i will be heard -Jessica Wed, 21 Sep 2011 15:16:26 +0000 http://wordpress.org/?v=2.9.2 en hourly 1 Paper bag Lunch http://lifeinspiresme.com/2010/05/paper-bag-lunch/ http://lifeinspiresme.com/2010/05/paper-bag-lunch/#comments Mon, 10 May 2010 20:28:12 +0000 Jess http://lifeinspiresme.com/?p=711 4/30/10-

Little Man making Huge Strides

Look who’s starting to walk!!!!! It was a Cooper weekend filled with a few surprises and tons of laughs. Cooper amazes me with something new every time I see him. I can’t even believe that he is already turning one later this month.

5/2/10-
Happy 60th Wedding Anniversary Grandma & Grandpa!

60th Wedding Anniversary

5/8/10-

Freezing for NF?! 5K River Bank Run

The River Bank Run was this past Saturday. Over 75 of braved the cold. The weather definitely effected made it hard for me to even function, but I did manage to finished with the many loved ones by my side… over 75 to be exact.

...And a milestone is made!

After unthawing from the walk it was time for the ‘Walk with Grace’ fundraiser at Grand Rapids Art Museum for Neurofibromatosis (NF). The event took my breath away; such a magical evening filled with tons of great people, that flew by in the blink of an eye. The Hanlon family did a wonderful job. Hope it raised lots of money for NF.
Minus the glass slipper, although my cousin did surprise me with a beautiful flower, I know exactly how Cinderella felt when the clock stuck midnight. At 9:57pm I was headed home to rest my tired body from such an action-packed day.

My glass slipper

5/9/10-
Happy Mummie’s Day to all of the moms in my life, especially mine because she does so much. My manager; my #1 cheerleader; my best friend; I LOVE MY MOM!

♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥

5/10/10-
Back to reality, a busy week ahead filled with new challenges to overcome.

Tomorrow is Surgery Day to have the port placed in my chest to make it easier to receive treatment. We are on a roll this year with soon to be 3 surgeries before my quarter century birthday.

Speaking of treatment… It starts Thursday, which ironically is when Doodle Day kicks off. I hope you like this year’s doodle; it’s food for thought.

Everyday is a struggle, but with perseverance [and support from loved ones], milestones are made. – Me

]]> http://lifeinspiresme.com/2010/05/paper-bag-lunch/feed/ 0 Swoop Surgery: May 2009 http://lifeinspiresme.com/2009/05/swoop-surgery-may-2009/ http://lifeinspiresme.com/2009/05/swoop-surgery-may-2009/#comments Thu, 07 May 2009 12:30:18 +0000 Jess http://lifeinspiresme.com/?p=335 May 6, 2009-  Before the sun had risen I was up at 5am. With no breakfast in my tummy and no makeup on my face, my mom & I headed to the hospital. Not sure why but I was channeling the Teenage Mutant Ninja Turtles (the 1990 cartoon), and my mantra walking into the hospital was “Let’s turtalise em!”  Yes, let’s turtalise these tumors!!

We checked into outpatient, signed some forms, and headed back to get prepped for surgery. Here is my small complaint… what is the first thing you wake up in the morning and do?? Most people go to the bathroom. Prepping for surgery they want you to pee in a cup to run some tests, general procedure. Well I couldn’t go, so they ended up having to draw blood. I hate needles!! The IV is bad enough, and more needles set me over the edge..

Surgery was a few hours and I woke up in Recovery with minimal pain. I did a swoop surgery to remove 10 tumors from head to toe… more like head to thighs and my poor boobie (boob) was a wounded in battle. Released from the hospital about 1pm and home to veg the day away on the couch. I tossed my cookies a few times due to the anesthesia, and really want some Strawberry Kefir to settle my stomach.

  

 

May 7, 2009-

 

I woke up at 1am in a lot of pain and failed at my countless attempts of opening my bottle of pain med’s. Child proofed sucks!

 

Plan today is to convince Tyler (my brother) to get me some Kefir… rest would be good too.

 

Final Notes-

 

I went under the knife again…. And kicked some serious ass!  Another surgery pulled off flawlessly!!

 

The River Bank Run this Saturday in Grand Rapids (Michigan) and my cause is simple- I’m doing this for Neurofibromatosis (NF), a genetic disorder that I live with. I’ve been doing the fulltime patient gig since the age of 7, with more than 20 surgeries under my belt and many more to come; it’s easy to lose sight of hope. This is where you have to keep your head high and keep on fighting. What I do sucks, but it’s crucial to never give up.

 

Check out my First Giving page for more information on the fight the cure NF.

http://www.firstgiving.com/jessicastone

 

All4aCause: All4NF

 

Peace, Love, Rock on!

Jessica Stone

 

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