Life Inspires Me

If I were a runner, I’d run marathons.

If I were a biker, I’d compete in The Tour de France.

If I were a swimmer, I’d swim across the ocean.

I would compete in triathlons’ to raise awareness for Neurofibromatosis (NF).

But I’m not a runner, or a biker, and I don’t swim long distance because my balance has been affected and I fatigue easily, all due to NF.

If I were a musician, I’d sing till my cheeks turned blue and then sing some more.

If I were a musician, I’d beat my drums from sun rise to sunset and underneath the moon.

If I were a musician, I’d make records and donate the profits to NF.

But I’m not a musician.

Aside from my Cochlear Implant that I’m still adjusting to I’m deaf and pretty tone-deaf.

I gave up my hearing last year in order to save my life with the removal of an acoustic neuroma and paralyzed a vocal cord having a tumor removed from my esophagus in 2006.

If I were an illusionist, I’d make my tumors disappear, so I wouldn’t have to have anymore surgeries.

If I were an illusionist, I’d make all my café-au-lait and scars vanish.

If I were an illusionist, I’d take away all the tears my family has shed for me with every medical obstacle I’ve been dealt.

But I’m not an illusionist and tumors will keep coming and surgery is always going to be a part of my life.

I like my café-au-lait and the scars I wear head to toe because it tells a story of what I’ve been through and reminds me what I am grateful for.

Those tears my family has shed only make our bond that much stronger.

If I were a doctor, I’d help all those living with NF in hopes to find a cure.

But I’m not a doctor… I am a shoulder to lean on and a voice for those that aren’t heard.

I was diagnosed with NF2, but to me type 1 or type 2 doesn’t matter, because together we are NF.

I am an artist, I wouldn’t say a great artist, but art is something that drives me.

Crayons, markers, pencils, or paint, or even chalk; I love to create, and this is something I doing daily.

I carry crayons and a small note pad in my purse, and can usually be found escaping reality to color a little picture to brighten my mood.

Recently, I doodled on a card for a cause very dear to my heart. I doodled for Neurofibromatosis (NF) and it’s available on eBay now. Take a minute to click on the doodle icon above or the link below to check out my doodle & doodles from various celebrities.

http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItem&item=260406321301

Want to make a difference in my life and the lives of others living with NF? Place a bid. Every little bit adds up in a big way.

Peace, Love, Rock on!

Jess

My Doodle for NF